At five years old, Julianna Snow has already experienced a lifetime worth of pain.
The Oregon girl is dying from an incurable, degenerative neuromuscular disease called Charcot-Marie-Tooth (CMT), which has had her in and out of hospitals for the past 18 months enduring “countless procedures” and spending “weeks at a time trying to breathe,” her mom, Michelle Moon, wrote in a post entitled “My Daughter Wants to Choose Heaven Over the Hospital'” on The Mighty, a website for families struggling with disabilities, serious diseases and life and death issues.
So earlier this year, her parents, Michelle Moon and Steve Snow, asked her what she wanted to do the next time she got seriously ill and needed to go to the hospital.
Their daughter chose heaven, her mom, who also has a blog, wrote on the website.
“A few months after we started hospice, Julianna made it clear to us that she does not want to go to the hospital again,” her mom wrote in May 2015. “Like so many kids who have had to face life-threatening illness, she is wise beyond her years – but she is still only 4 years old.
“I do not think that she will survive another illness, especially without aggressive intervention,” she wrote. “Julianna understands this, too. We have had some remarkable, uncomfortable, humbling conversations about heaven.”